The World Down Syndrome Day happens to take place on the 21st of March this month and I just got shared this beautiful Facebook page “A Child With Down Syndrome – Kaiden’s Journey”. The page is managed by the proud mum of Kaiden who aims to share her baby boy’s journey on Facebook with friends and the extended Nepali and non-Nepali community on Facebook to spread a better understanding of down syndrome. Apart from sharing Kaiden’s progress, the proud mother does not shy away from seizing opportunities to inform others by creating leaflets to hand out in the community.
Kaiden’s mother acknowledges that she is very lucky to raise Kaiden in the UK where there are more provisions for children and adults with learning difficulties. She has kept a close connection with the Down Syndrome Society Nepal and is currently fundraising for the society. Whether it’s raising a child with down syndrome or not, she has also formed a closed group “Nepalese Special Needs Family” on Facebook where parents can share their stories, information and useful advice for fellow parents.
On that note – you might be interested to read this Huffington Post article about the Down Syndrome Society Nepal.
Quick Lowdown on Down Syndrome
“Down’s syndrome is a genetic condition caused by the presence of an extra chromosome in the body’s cells. Down’s syndrome is not a disease, and it is not a hereditary condition. It occurs by chance at conception.As yet we do not know what causes the presence of an extra chromosome 21. It can come from either the mother or the father. There is no way of predicting whether a person is more or less likely to make and egg or sperm with 24 chromosomes.
What we do know is that no one is to blame. Nothing done before or during pregnancy can cause Down’s syndrome. It occurs in all races, social classes and in all countries throughout the world. It can happen to anyone.”